Tuesday, May 5, 2015

A Little Update on Our Girl

I had Monday off from work, so I decided to take Maggie to the beach.  I think we took her once last year, but honestly I don't remember so we are going to call this her first trip.

People ask me daily about Maggie which prompted me to catch you up on how she is.  First, I want to tell you a little bit about who she is.  When Maggie was sick, Trent and I feared never seeing her spunky personality again.  I am glad to report that it is finally returning to us.  I think it is a combination of brain healing and weaning her off of her seizure meds.  Regardless, we are thankful. 

Maggie is curious and opinionated.  She is also very loud when you try and thwart her curiosity or opinion. :)

She loves dresses and asks to wear one every day.  She also loves jewelry, tiaras, and playing with my hair.

She is super smart, likes to read, and loves to sing.  If I am singing in the car, she will tell me to stop and that it is her turn.  I guess it is fair to say that she also likes being the center of attention.

So onto her health.  We are still praying that Maggie will qualify for a procedure called a biventricular repair.  This procedure would be performed in Boston and would create a four chambered heart.  It looked initially like she did not qualify but they requested additional studies to be sure.  We have heard "no" before and then seen God do incredible things in her life, so we are still walking and trusting.

If she does not qualify for the bi-vent, she will have a procedure called the Fontan.  This procedure is a bit older and does not have the long term outcomes that we would see with the bi-vent.  This would most likely occur in September.

So you can be praying with us that she would qualify for the bi-vent in Boston.  We aren't giving up yet and are choosing instead to reflect on all that we have seen God do in her life.

Thank you for caring and thank you for praying.  I will let you know what we hear.


Suzette Jones said...

So glad she has a mommy who is such a fantastic photographer! These are such beautiful pictures! She is such a spunky little miracle baby girl! What a privilege to watch her grow and see her live out the life God has for her!

Kelleyn Rothaermel said...

Totally adorable! This post should come with a warming. Such a sweetie!