Saturday, April 26, 2014

An Update On My Girl and Her Precious Heart

This is not another post about my child hating wildflowers.  It is actually all about her heart but the pics I took for the update do indeed reveal her dislike for sitting in wildflowers.  Once again....


For those of you just now tuning in here, Maggie has a single ventricle.  This is a very serious heart condition that will some day require open heart surgery.   This surgery is called the Fontan and is generally performed in 2 parts.   Because Maggie was an orphan in China, she missed the normal time frame for the first part.


We expected that she would have the first part soon after arriving here, but this week we were told that she would wait.


This is not because she is a poor candidate but instead because she looks so good.  Her heart is well balanced and is doing a good job at protecting itself.


Her surgeons have decided to continue to monitor her and hopefully wait until she is 3 to do surgery.  At that time they will perform both procedures at once.  This will mean only 1 open heart surgery instead of 2.  This is great news.  


We are relieved to just get to enjoy her for now and not have to worry about what is just around the corner.  I would love for God to perform a miracle and heal her heart between now and then. 


For now, I am just thankful she is home, she is stable, and she is mine. 

4 comments:

Kelleyn Rothaermel said...

So glad to hear such good news! Praying for your sweet girl! May the Lord guide their minds and hands.

Debbie Dittrich said...

So glad to hear this update. I will continue to pray. Ginny it is always such a blessing to hear all that God is doing in you and your family. Thanks for your posts.

Naomi said...

Wonderful news! What lovely photos with the dog! Her expressions are certainly worth capturing!

Hugs and Love to your family,
Naomi

Leslie said...

she is precious even if she doesn't like sitting in wildflowers. I don't much either b/c they make me sneeze! ;)

Our big girl had her fontan circulation completed in one procedure just 12 days shy of her 3rd birthday.

It was a huge answer to prayer for our family and 5 1/2 years later, she has never needed another OHS.

Our younger daughter had her glenn in Shanghai thanks to LWB and then her fontan completed here a year ago now, and she too just got a wonderful report from their cardiologist.

It is absolutely amazing and miraculous what modern medicine can do for these single-ventricle hearts!