The orthopedic hand specialist said that he felt pretty sure she has Arthrogryposis. He went on to say that she is the most mobile and functional patient with Arthrogryposis he has ever seen. The therapist came in and took video of Ruthie feeding herself so she could show her students what they should look like after therapy. That cracked me up since she has had none. He recommended a series of surgeries that I am not convinced are necessary yet. We will get a 2nd opinion from Shriner's Orthopedic Hospital as soon as they are able to schedule us. The Dr. did not feel like Ruthie would gain any more motion but I have a good friend who has a daughter with the same diagnosis and her daughter has gained motion, so I don't buy that theory yet.
Here are a few recent pictures
I just couldn't resist the pig tails. Isn't she so cute?
Kissing her bubba. She loves her big brother.
My sweet newly middle child who is trying to find his place in the world
Me and Ruthie with her great grandmother Dot who is 94 years old.
4 comments:
I'm clarifying for those who are safety-conscious: most rockets were safely launched and recovered. One landed in the adjacent neighborhood and required significantly more search and rescue efforts by Ginny, Sam, and neighbor Jared.
Hey Girl!!!! Ruthie is so adorable with those pictures and I kid you not but in that photo, she reminded me of you in her looks!!! Is that just so precious? perhaps it the expression she has learned to make from you!! Many people tell me that although I look nothing like my Mum, she is dark and I am blonde, we do make the same expressions!!
It is lovely to catch up with you. We are ready to leave for home tomorrow but we all have stomach upsets!!! Should be a good flight home.
I must be tired..... I meant to say that Ruthie looks adorable with those pigtails!!!!
Love the photos...especially the one where Ruthie is planting a kiss on your son's cheek...too cute! :) And here piggy tails are adorable!!
I would agree with you in getting a second opinion. Especially since this doctor already believed she had gone through therapy! Imagine if she had!?! Do keep us posted. Ruthie will remain in our prayers as you seek a second opinion.
Blessings and Hugs,
~Tanya
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