It appears the sleepiness of Friday was a hint of what was coming on Saturday. Maggie woke up Saturday morning with what appeared to be tremors in her right arm and leg. The neurology team initially dismissed them as part of her recovery but we weren't as confident in that explanation as they were. She slept for several hours Saturday morning and then woke up with tremors that were more intense than the earlier ones. She slept again and awoke with full blown seizures. Eventually the team decided we needed a CT scan. They found that the bleed on her thalamus had developed into a fluid filled cyst that was growing and closing off the flow of cerebral spinal fluid. This was causing her to have hydrocephalus and thus the seizures.
At midnight they performed surgery to drain the cyst in the middle of her brain and provide a shunt for the CSF. Sending your heart baby into brain surgery is almost as scary as holding her while she is having a stroke. We said our goodbyes again and begged her to not give up. This kid is a fighter and for that I am so grateful. She did very well and had no complications.
We are back in the ICU and in a room with a very loud kid with even louder family members. Why you put a kid who just came out of brain surgery in a shared room is beyond me. As you can see, my filter is shot. I am raw from lack of sleep and extreme emotion.
I am child of attorneys and I was in debate in high school. My husband has said that he can't win an argument with me because I hold to my side of the argument to the death (probably not a good thing, I know). I come by it naturally. I say this because that is what my faith feels like right now. I feel like I am grabbing onto what I know to be true when the circumstances around me are pushing hard to try and make me fold. It's not pretty, but it is my only option. I have to hold onto Jesus because without Him, all is lost.