It appears the sleepiness of Friday was a hint of what was coming on Saturday. Maggie woke up Saturday morning with what appeared to be tremors in her right arm and leg. The neurology team initially dismissed them as part of her recovery but we weren't as confident in that explanation as they were. She slept for several hours Saturday morning and then woke up with tremors that were more intense than the earlier ones. She slept again and awoke with full blown seizures. Eventually the team decided we needed a CT scan. They found that the bleed on her thalamus had developed into a fluid filled cyst that was growing and closing off the flow of cerebral spinal fluid. This was causing her to have hydrocephalus and thus the seizures.
At midnight they performed surgery to drain the cyst in the middle of her brain and provide a shunt for the CSF. Sending your heart baby into brain surgery is almost as scary as holding her while she is having a stroke. We said our goodbyes again and begged her to not give up. This kid is a fighter and for that I am so grateful. She did very well and had no complications.
They performed a repeat CT scan this morning and the fluid is now flowing freely. Maggie's yamaka head dressing lasted about four hours before she reached up and pulled it off. That's my little fighter. She also pulled her airway out while in recovery.
We are back in the ICU and in a room with a very loud kid with even louder family members. Why you put a kid who just came out of brain surgery in a shared room is beyond me. As you can see, my filter is shot. I am raw from lack of sleep and extreme emotion.
I am child of attorneys and I was in debate in high school. My husband has said that he can't win an argument with me because I hold to my side of the argument to the death (probably not a good thing, I know). I come by it naturally. I say this because that is what my faith feels like right now. I feel like I am grabbing onto what I know to be true when the circumstances around me are pushing hard to try and make me fold. It's not pretty, but it is my only option. I have to hold onto Jesus because without Him, all is lost.
So from here we need full healing and rest. That would pretty much cover it all.
10 comments:
Prayers for quiet, peace and rest.
Praying for you, from the Netherlands.
In Dutch we know this poem, do yo know it too?
It helped me during hard times in my life:
Footprints in the Sand
One night I dreamed I was walking along the beach with the Lord.
Many scenes from my life flashed across the sky.
In each scene I noticed footprints in the sand.
Sometimes there were two sets of footprints,
other times there were one set of footprints.
This bothered me because I noticed
that during the low periods of my life,
when I was suffering from
anguish, sorrow or defeat,
I could see only one set of footprints.
So I said to the Lord,
"You promised me Lord,
that if I followed you,
you would walk with me always.
But I have noticed that during
the most trying periods of my life
there have only been one
set of footprints in the sand.
Why, when I needed you most
you have not been there for me?"
The Lord replied,
"The times when you have
seen only one set of footprints
is when I carried you."
Mary Stevenson
Praying or rest and comfort for all and especially healing for Maggie! She is definitely a fighter which is good! Love and hugs to all from the Mayrants in Huntsville.
God is in control all the time,nothing wavering, no shadow of turning. He never sleeps or slumbers. The Lord feels your sorrows and your hope. He will never let go of his children. He blesses his children with peace, even under the most strenuous circumstances. Receive his peace. Praying for healing, Becky (Rachel H.'s mom)
prayers
She is a fighter like her Mama! Your spirit and faith is what has sustained you through all this where others would have cratered! Stay strong my friend! Praying for the "roommates" to be transferred.
As your friend from Holland has stated. He is by your side. When you take on the Yoke of Christ he helps you lift the weight of the burden even when it does not seem like it! Hang in there! Praying for you and your family!
Come to me, you who are weary and heavy-burdened, and I will give you rest. Jesus, provide this precious family sweet rest that only You can.
I check your blogs every day for updates. Praying for you!
Praying for peace, quiet and sweet dreams.
Praying in Lubbock, TX for your baby's complete healing and rest for you... And a quiet room soon!
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